Paediatric Arrest: But What About the Parents?
“Standby call please: 19 month old male, cardiac arrest…”
They are the words I half expect whenever the red phone rings between 6 and 7am, words which strike both fear and dread into the heart of even the most hardy PEM doctor. It is a nightmare scenario no doctor wants to face. But once the patient arrives, we know what to do – there are algorithms which we can follow like automatons – and there is never a shortage of pairs of hands; paediatric arrest calls, in particular, are usually extremely well staffed.
The resuscitation of a critically ill child in the Emergency Department is a high pressure situation. Parents tend to be present for all paediatric-related attendances to the Emergency Department, from manipulation of fracture to full cardiorespiratory arrest. The presence of a parent can provide reassurance to an anxious child and a valuable ally in clinical examination to the struggling doctor; we tend to assume that neither of these roles is necessary in adult patients. This does not always work to our advantage; I have a very clear recollection of a father fainting during reduction of an ankle fracture/dislocation (and the absence of a spare pair of hands to help him out while the three of us present were engaged in sedation (plus counter-traction), manipulation and plastering). But why do we keep parents present during cardiac arrest: is it the right thing to do?
It seems strange to think that as recently as 1996, attention had to be drawn by the Resuscitation Council to the disparity between relatives’ wishes to be present for CPR and clinicians’ unease at the suggestion. At this time, relatives’ presence at cardiorespiratory arrest was by no means the accepted norm. A review of the literature in 1998 echoed this, describing papers which felt that relatives should definitely be present if the patient was a child, and others where staff were against parental involvement. It seems likely that as we shift in clinical culture away from a paternalistic approach to medicine we also hand the responsibility for such decisions to the relatives and parents of our patients.
I wonder whether it is the challenge of staying our own emotions which makes us uncomfortable with the presence of the parents, as if any outward expression of the potential devastation when a child dies will render us unable to maintain the clinical façade we so often and so readily hide behind.
The outcomes of paediatric arrest are poorer than many staff believe, but it is thankfully an infrequent occurrence, so data on all aspects of paediatric arrest is difficult to obtain. Paediatric arrests often run for longer than adult ones and a recent study appraised here seems to suggest that some children may have a good neurological outcome even after prolonged CPR.
A survey in 1999 asked 400 parents whether they would want to be present if their child needed to undergo invasive procedures of varying seriousness and found 83.4% would want to be present at resuscitation if it was likely that their child would die, compared with 71.4% who would want to be present “if their child was unconscious during resuscitation”. It is hard to imagine a situation of resuscitation in an unconscious child where death was not a significant possibility; these findings then emphasise the importance of also communicating expectations to parents in a resuscitation situation.
A small scale study in 2008 provides some useful insight into parental perspectives; 8 interviews were conducted with 14 parents some time after the resuscitation to ascertain their feelings and thoughts. The predominant perceptions were that being present meant being there for the child, and that this took precedence over the parents’ own anxieties or concerns. There was also a feeling that witnessing events helped to “make sense of a living nightmare”, and there were connotations of guilt in the statements of parents who had been absent for one reason or another. Those healthcare professionals who feel that clinical management has prevented them from providing parents with support might be reassured; recollection of the resuscitation itself was difficult and “a bit of a blur”.
So it looks as though most parents would want to be present, especially if there is a chance the child would die. What about the staff then?
A study of staff perceptions of parental presence at cardiac arrests in a Paediatric Intensive Care Unit found that only 61% of staff who had experience of parents being present would enable parental presence in future. A survey of 158 critical care nurses found that 73.5% thought parents being present was a positive experience, although 63.4% felt that doctors did not want parents present.
I wonder whether this perception extends to the ED; now, in 2013 it seems unthinkable that we would not offer – and even encourage – parents to be present. Standard practice in EDs I have worked in is to allocate a separate member of (usually nursing) staff to the role of parental liaison, explaining procedures, treatments and actions which are being undertaken and providing a point of contact throughout the ED episode. Obviously it is essential that at some point the parents discuss the situation with a doctor or senior healthcare professional, especially when resuscitation is unlikely to be successful and the team is moving towards discontinuing CPR. One of the most challenging aspects of a paediatric arrest situation is maintaining leadership of the situation with an often overwhelming number of staff in attendance; the allocation of a doctor as well as a nurse to the important role of liaising with parents may be a valuable use of some of these personnel.
Finally, it is useful to hold an informal debrief after such cases although the practicalities of the Emergency Department do not often allow this to occur immediately. Paediatric arrests can be emotionally difficult for all concerned (read this blog post for a chilling account of a paediatric arrest written by a doctor/parent) and even if I personally feel that the care provided was as good as it could be, I know this does not necessarily represent the perceptions of all present parties. A difficult experience of interacting with the family of the child may occur independently of the outcomes of resuscitation and have a lasting effect on staff.
Regardless of the department workload, a brief discussion of the case at a time relatively soon after events can both address human factors and also identify valuable learning opportunities, improving future team performance and hopefully outcomes – see articles here (2008), here (2011) and here (2011).
What are your experiences of parental presence at paediatric arrest – positive, negative, useful or uncomfortable?